Wish I may Wish I might

The most heartbreaking thing one can ask of a mother is to have her watch her child suffer. I have done just that for over a decade. I watch and can do little. I am caretaker not biologist nor immunologist ..virologist ..researcher..or doctor..though I have met with and discussed in depth with these "specialists" what they think is causing this disease in over 3 million people in the US alone. They are guessing..they don't know. Do no harm means do nothing. Mothers can not do nothing.
So we are 6 weeks into the desert air. Patient is a bit more active..we are outside most of the day..his phone app tells him he has taken more steps on some days here than at home. Stomach ( gut biome) is working well..with fairly restricted diet. Sleep is mostly uninterrupted. Half day excursions to hike or shop the farmers market are manageable. What we look for is how Ty feels the next day.In years past energy spent on one day..gets taken away 10 fold in a day or two..( yes they are studying that as well). There appears a little less loss here...but still there. He has a schedule of detox treatments he performs on a daily basis..and added a "good"dust mask to wear in public places that feel "problematic" to him . Molds and toxins we breath everyday can cause sudden onset of whole body inflammation and slow down cognitive function..almost immediately for a great number of ME/CFS/SEID  affected patients (the name is a mouthful and part of the problem..not recognized by the medical profession). Systemic Exertion Intolerance Disease.We wish it was called " can't move, can't think, and find out fucking why please" disease.
The most notable improvements seem to occur at higher elevations. We know that higher means less oxygen content..there are theories about that as well..pathogens may be making excess oxygen in the tissue causing too much oxygen to accumulate in the body...going where there is already less..may balance things a bit..? .."give us a million bucks" researchers say "and we can study that!"
I've seen a few half smiles and heard some light-hearted whistling..small things.
A new camera to document the desert and her delights has also added some physical and mental exercise ..and a reason to wait for the next sunset. For me..writing helps..thanks for reading.
Here's some sculpture I found in the desert..and

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